What a difference a year makes! Carter is now three!!! He wanted a birthday like everyone else, and I so so badly wanted him to have it. This boy has my heart for so many tender reasons. I did my best to give him a normal birthday meal of hamburgers. He had a gluten free bun, patty and pickles. He ate the bun and pickles, but was so happy! I made him a gluten free cake and chocolate coconut cream frosting. He blew out the candles at least six different times, and loved it. He got rainbow sherbet ice cream to go with his cake, but in the end ate only the frosting.
So why am I tearing up right now? There were so many worry-filled days, weeks, moments... I feel like it was 10 years, not just one. This will sound dramatic, but I feel like his life is just so fragile. Much more fragile than normal. I can't explain my feelings about it, but a year ago, I really was just soo sooo worried. Carter was withering away to nothing, and no one would listen to my concerns. He would just lay down all the time, rarely playing standing up. Or if he was standing up, he would be leaning on something as if he had no strength. Not to mention the constant stream of diarrhea that smelled horribly of vomit and burned on contact.
I'm so glad for the day I took him back to the doctor and wouldn't take no for an answer. I just don't know how they could have thought that a kid could have a stomach bug for 6 months. No no no.
Today, he is thriving. He is our light. He is crazy and funny and sings all day long and has a memory like a computer, like Trevor, but for music. He remembers everything. I'm so grateful for the blessing of being referred to the specialist who has helped us figure out how to help him.
He doesn't get to eat many things, but Carter never ever ever complains. I still worry about him many times a day. I have to watch him for signs constantly. It has only happened a few times, but his face turns white, his lips have absolutely no color, as well as his eyes, and even though his eyes may be open, no one is home. His head gets all bobbily too. Like, he can't keep it up. Like he is about to pass out. When this happens, I grab whatever sugary food I can find and shove it down his throat. Normally ice cream or chocolate almond milk. It's scary, but he comes back and is fine.
I love my Carter. He has a special place in my heart, even though he has trimmed at least 20 years off my life, I'd gladly give him more just to get to experience life with him.